MASTER
 
 

Not a Moment to Spare

By DEFY Foundation (other events)

Saturday, September 14 2019 7:00 PM 10:00 PM
 
ABOUT ABOUT

Don't miss your chance to take a strike at Vascular Ehlers Danlos Syndrome, one pin at a time! Join us as we hit the lanes, bid on silent auction items, vie for bowling prizes, and more! Red pants/attire optional!

Ticket price includes food, drinks and shoe rental. Group discounts are available for those registering as part of a group of 10 or more.

Proceeds benefit the DEFY Foundation's mission to raise awareness of, and fund research for, Vascular Ehlers Danlos Syndrome, a rare but deadly disease that has no treatment and no cure. For more information about the Yasick family, who inspired our fight against this disease, please watch our story here: https://www.youtube.com/watch?v=gEb4RFLPsuo&feature=share.

Mailing Address

PO Box 3386 West Chester, PA 19381